|
Disease name
|
근육위축가쪽경화증
Amyotrophic lateral sclerosis
|
|
|
Registry name
|
|
The Korean ALS registry |
|
|
Initial update
|
|
2010-04-07 |
|
|
Last update
|
|
2011-02-12 |
|
|
The number of registered patients
|
|
218 |
|
|
Director
|
|
손은희 MD, PhD /충남대학교 신경과 |
|
|
Address
|
|
301-721 대전 중구 문화로 33 충남대학교병원 신경과 |
|
|
Email
|
|
seh337@hanmail.net |
|
|
Contact
|
|
240-280-7882,8896 |
|
|
Patient's registry URL
|
|
www.kalsr.net
|
|
|
References
|
Mitchell, J.D. and G.D. Borasio, Amyotrophic lateral sclerosis. Lancet, 2007. 369(9578): p. 2031-2041.
PMID:
17574095
|
Beghi, E., et al., The epidemiology of ALS and the role of population-based registries. Biochim Biophys Acta, 2006. 1762(11-12): p. 1150-1157.
PMID:
17071060
|
Roman, G.C., Neuroepidemiology of amyotrophic lateral sclerosis: clues to aetiology and pathogenesis. J Neurol Neurosurg Psychiatry, 1996. 61(2): p. 131-137.
PMID:
8708678
|
Chancellor, A.M. and C.P. Warlow, Adult onset motor neuron disease: worldwide mortality, incidence and distribution since 1950. J Neurol Neurosurg Psychiatry, 1992. 55(12): p. 1106-1115.
PMID:
1479386
|
Beghi, E., 127th ENMC International Workshop: implementation of a European registry of ALS. Naarden, The Netherlands, 8-10 October 2004. Neuromuscul Disord, 2006. 16(1): p. 46-53.
PMID:
16376080
|
Majoor-Krakauer, D., P.J. Willems, and A. Hofman, Genetic epidemiology of amyotrophic lateral sclerosis. Clin Genet, 2003. 63(2): p. 83-101.
PMID:
12630951
|
Logroscino, G., et al., Descriptive epidemiology of amyotrophic lateral sclerosis: new evidence and unsolved issues. J Neurol Neurosurg Psychiatry, 2008. 79(1): p. 6-11.
PMID:
18079297
|
Brooks, B.R., El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular D
PMID:
7807156
|
Miller, R.G., et al., Consensus guidelines for the design and implementation of clinical trials in ALS. World Federation of Neurology committee on Research. J Neurol Sci, 1999. 169(1-2): p. 2-12.
PMID:
10540001
|
|